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You are not alone.

Connect with other families and adults.

What is PHACE Syndrome?

Read the orgin of PHACE and how it is diagnosised.

Enroll in the PHACE syndrome registry.

Read about the PHACE and LUMBAR research.

2025 PHACE Awareness Week

National Conference- June 20-21, 2025

Facing Forward Together (2)_edited_edite

PSC Family Conference
June 20-21, 2025
Boston, MA
Learn more
EARLY BIRD REGISTRATION ENDS MARCH 31, 2025
REGISTER TODAY!

PHACE Syndrome Community is a proud member of:

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