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2024 PHACE Syndrome Community Virtual Meeting 

Corporate Sponsorship 

 

2024  PHACE Syndrome Community Virtual Patient Meeting: July 20, 2024

 

The PHACE Syndrome Community hosts a one day virtual meeting on the opposite years of the in-person family meeting. Parents of affected children, and adults with PHACE syndrome, attend presentations from medical experts, and can interact with other families through Zoom. 

 

A group of PHACE syndrome medical experts will present virtually, and discuss published research studies, opportunities for patients to further research, as well as guidelines that can assist in the care of those with PHACE syndrome. 

 

Objectives of the Meeting:

1. Provide families with up-to-date evidence-based information regarding diagnosis, and treatment of PHACE syndrome.

2. Provide families with a forum for networking and psychosocial support.

 

Corporate sponsorship supports the conference in many aspects. Although the meeting is virtual, and expenses are at a minimum, corporate support allows families to hear live, from physicians with an interest and understanding of PHACE syndrome, and for families to gain better insight into the PHACE syndrome diagnosis. Your donation helps the PSC offer this meeting platform. 

 

The PSC is grateful for your consideration to become a sponsor of the 2024 Patient Meeting.