2025 PHACE Syndrome Community National Conference
Corporate Sponsorship
2025 PHACE Syndrome Community National Conference: June 20-21, 2025
The PHACE Syndrome Community hosts a two-day, in-person national meeting every two years. Parents of affected children and adults with PHACE syndrome attend the meeting, listen to presentations from medical experts, interact in person with other families, and have the opportunity to learn more from both the medical community and peers. Many families do not have access to care or knowledgeable physicians in their community, thus this meeting may be their only time to speak to a doctor with an understanding of PHACE Syndrome.
A group of PHACE Syndrome medical experts will present and discuss published research studies, opportunities for patients to help further research, as well as guidelines that can assist in the care of those with PHACE Syndrome. There are talks on various topics a PHACE Syndrome patient will find beneficial.
Objectives of the Meeting:
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Provide families with up-to-date evidence-based information regarding diagnosis and treatment of PHACE Syndrome.
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Provide families with a forum for networking and psychosocial support.
Corporate sponsorship supports the conference in many aspects. Corporate support allows families to hear from physicians with an interest and understanding of PHACE Syndrome, and for families to gain better insight into the PHACE Syndrome diagnosis. Your donation helps the PSC offer this meeting platform; the PSC is grateful for your consideration to become a sponsor of the 2025 National Conference.
This year we also have an opportunity for an event specific corporate sponsorship. We are seeking sponsorship for our Friday Family Night event, a dinner and social event for the families of PHACE Syndrome patients to come together, have a delicious meal, and build relationships and support systems. 2 Sponsors, one to sponsor dinner and one to sponsor our location, would make this event possible with no financial impact on the families attending. If you are interested in sponsoring this event specifically, please be sure to select that option in the "Sponsorship Level" dropdown menu.
