Dear friends,   On April 21, 2025, I will be running the Boston Marathon to raise funds for research on PHACE and LUMBAR syndromes. This...

Happy New Year, everyone! Can you believe it's already February 2025? Time certainly flies! I have two exciting updates to share with you...

Hello friends! Want to share this brand-new study, which found that statins, drugs commonly used to lower cholesterol in adults, might be...

I am excited to start the “PHACE/LUMBAR research” blog! The purpose of this blog is to periodically share interesting things with you all...

Story by Claire's mom, Amy Hello everyone! I’m Claire’s mom, Amy. I  had a regular pregnancy, Claire was a full term baby.  When she was...

By Whitney Pacheco, PHACE Syndrome Community Board of Director The PSC’s National Conference last June was where I shared my family’s...