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What is PHACE Syndrome?
PHACE syndrome is a disorder characterized by large infantile hemangiomas of the face, scalp and neck associated with developmental defects of the brain, blood vessels, eyes, heart, and chest wall. Each letter of the name PHACE represents a different area of potential symptoms.
Join our community
By doing so, you'll become part of an organization who supports families and individuals with PHACE syndrome.
You will receive online newsletters and updates from our organization about the PSC, research and other pertinent information.
Upcoming Events
Save the Date!
PSC Family Conference
June 20-21, 2025
Boston, MA
More details to follow!
PHACE Syndrome Community is a proud member of:
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