The time has come for our 2025 in-person PHACE Syndrome Community National Conference!
We are heading to Boston, MA and Boston Children's Hospital:
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The PHACE Syndrome Community hosts meetings for individuals and families to learn more about the medical complexity of PHACE and LUMBAR syndromes, and to ask questions to the community of physicians familiar with PHACE and LUMBAR.
Every other year, the PHACE Syndrome Community hosts an in-person conference, allowing individuals to meet face to face. The meeting of this magnitude means so much to those who have never met another person with PHACE syndrome, particularly children. We are so excited to once again be able to come together with other PHACE Syndrome community members for a weekend of learning, connecting, and support!
"IT'S WHERE I GET TO SEE OTHER KIDS JUST LIKE ME!"- Mira, Age 10
"THE CONFERENCE IS WHERE THE MAGIC HAPPENS"- PHACE Parent
Conference Registration
What's Included?
Pricing Information
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Conference attendance for up to 4 family members (2 adults, and 2 children)
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Breakfast, Lunch, and snacks on both conference days
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A PSC Swag Bag with gifts from the PSC Board of Directors
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Childcare for all child attendees during conference session at our amazing Kid Zone!
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$250 - Early Bird Registration! Price valid until March 31, 2025
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$275 - Price valid between April 1, 2025 - May 31, 2025
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$300 - Late Registration, Price valid June 1, 2025 - June 16, 2025