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2025 PHACE Syndrome Community Virtual Meeting 

Corporate Sponsorship 

 

2025  PHACE Syndrome Community National Conference: June 20-21, 2025

 

The PHACE Syndrome Community hosts a two-day, in-person national meeting every two years. Parents of affected children, and adults with PHACE syndrome, attend the meeting, and listen to presentations from medical experts, interact in person with other families and can have the opportunity to learn more from both the medical community, and peers.  Many families do not have access to care, or knowledgeable physicians in their community, this meeting may be their only time to speak to a doctor with an understanding of PHACE syndrome. 

 

A group of PHACE syndrome medical experts will present both virtually and in person, and discuss published research studies, and opportunities for patients to help further research, as well as guidelines that can assist in the care of those with PHACE syndrome. There are talks on various topics a PHACE syndrome patient will find beneficial. 

 

Objectives of the Meeting:

1. Provide families with up-to-date evidence-based information regarding diagnosis, and treatment of PHACE syndrome.

2. Provide families with a forum for networking and psychosocial support.

 

Corporate sponsorship supports the conference in many aspects. Corporate support allows families to hear live, from physicians with an interest and understanding of PHACE syndrome, and for families to gain better insight into the PHACE syndrome diagnosis. Your donation helps the PSC offer this meeting platform; the PSC is grateful for your consideration to become a sponsor of the 2025 National Conference.